Advocacy
Wrightslaw
Parents, advocates, educators, and attorneys come to Wrightslaw for accurate, up-to-date information about advocacy for children with disabilities.
You will find hundreds of articles, cases, newsletters, and resources about special education law and advocacy in the Advocacy Libaries and Law Libraries.
www.wrightslaw.com/
Advocacy
The Association for the Severly Handicapped (TASH)
Tash attempts to create opportunities, advocate, and to support excellence in an attempt to promote communities in which nobody is segregated.
www.tash.org/
American with Disabilities Act
ADA Technical Assistance Center
The ADA Technical Assistance Center provides information on the ADA and its implementation. It is funded by the National Institute of Disability Rehabilitation and Research NIDRR.
www.adata.org/
Assistive Products
Access Unlimited
Accessable vehicles for people with disabilities
www.accessunlimited.com/
Assistive Technology
Georgia Tech Center for Assistive Technology and Environmental Access (CATEA)
Links to resources on assistive technology
www.arch.gatech.edu/crt/resource/atlinks.htm
Assistive Technology
Governors Council of Disabilities in Georgia
www.arch.gatech.edu/crt/Techknow/Devices/Assistive.htm
Assistive Technology
The Alliance for Technology Access
The Alliance for Technology Access (ATA) is a network of community-based Resource Centers, Developers, Vendors and Associates dedicated to providing information and support services to children and adults with disabilities, and increasing their use of standard, assistive, and information technologies.
www.ataccess.org/
Assistive Technology
Trace Research & Development Center
The Trace Research & Development Center is a part of the College of Engineering, University of Wisconsin-Madison. Founded in 1971, Trace has been a pioneer in the field of technology and disability.
trace.wisc.edu
Brain Injury Association
Brain Injury Association of America
www.biausa.org
Brain Tumor Association
www.braintumor.org
Caregiver Information
Caregiver-Information.com
A guide with some useful information for anyone dealing with the challenge of caring for a loved one with a brain injury. Also contains information on stroke.
www.caregiver-information.com/
Case Management
Case Management Resource Guide
A free, searchable database of over 110,000 specialty healthcare services, facilities, businesses and organizations.
www.cmrg.com/
Chat Room
The TBI Chatroom and Homepage
www.tbichat.org/
Chat Room
The TBI Chatroom and Homepage
TBI/ABI Survivors and Family
groups.yahoo.com/group/tbi-survivor/
Children & Youth
National Information Center for Children and Youth with Disabilities
Information about disabilities in children and youth. Has listing of state resources for children with disabilities.
www.nichcy.org
Clinical Trials
CenterWatch
Information on current clinical trials.
www.centerwatch.com/
Clinical Trials
National Institute of Health listing of clinical research.
www.clinicaltrials.gov/
Cognitive Rehabilitation
Cognitive Rehabilitation Software
Below is a list of companies which make software for cognitive rehabilitation. These programs are typically designed to help people with cognitive impairments improve their functioning through progressive cognitive "exercises." They are best used in conjunction with a traditional program of therapy and should not be substituted for professional assistance.
trace.wisc.edu/docs/quick_sheets/qs8.html
Coma
Coma Recovery Association, Inc.
Our purpose is to help families of coma and head injury survivors by providing information and referrals, enabling them to make informed choices regarding treatment, rehabilitation and socialization alternatives as well as support from others who struggle with similar concerns.
www.comarecovery.org/
Coma
While you are waiting
A page directed to people who are waiting while someone is in a coma. Information on what to expect as a loved one or friend who is emerging from coma.
www.waiting.com
Coma
Nova Online:Coma
There's a revolution in the making in the treatment of coma patients. This website has a considerable amount of information.
www.pbs.org/wgbh/nova/coma/
Communications
Helping Parents and Professionals Communicate After a Child Has Been Injured
Effective communication between parents and health care professionals is essential in the healing process of children. The emotional impact of a child being hospitalized, however, often leaves parents feeling confused and anxious. This is a method for helping in this communication.
www.tbigrants.com/tip_card.htm
Communications
The Perspectives Network
Founded by a survivor of acquired brain injury. The Perspectives Network, Inc.'s primary focus is positive communication between persons with brain injury, family members, caregivers, friends and professionals dealing with persons with brain injury
www.tbi.org/
Computer Technology
Equal Access to Software and Information (C 2001)
EASI's mission is to serve as a resource by providing information and guidance in the area of access-to-information technologies by individuals with disabilities. We stay informed about developments and advancements within the adaptive computer technology field and spread that information to colleges, universities, K-12 schools, libraries and into the workplace.
www.rit.edu/~easi/
Drug Interaction
Rx List Page
www.rxlist.com/
Education
Parent Educational Advocacy Training Center
PEATC Mission Statement
The Parent Educational Advocacy Training Center assists the families of children with disabilities through education, information and training. Information and assistance to families in understanding and negotiating the education and service systems for their children with disabilities;
www.peatc.org
Education
Heath Resource Center of George Washington University
The HEATH Resource Center of The George Washington University, Graduate School of Education and Human Development, is the national clearinghouse on postsecondary education for individuals with disabilities.
www.heath-resource-center.org
Education
American Association of Community Colleges
Go to AACC bookstore and search on "disability"
www.aacc.nche.edu/
Education
The Association on Higher Education and Disability (AHEAD)
The Association on Higher Education and Disability (AHEAD) is an international, multicultural organization of professionals committed to full participation in higher education for persons with disabilities. The Association is a vital resource, promoting excellence through education, communication and training.
www.ahead.org/
Education
Council for Exceptional Childrew, Division for Learning Disabilities
The largest international profvessional organization dedicated to improving educational outcomes for individuals with exceptionalities, students with disabilities, and/or gifted.
www.cec.sped.org/abmenu.htm
Education
Disability Access, Information and Support (DAIS)
DAIS is an important resource to the higher education community, providing a menu of services for those concerned with disability and access in higher education.
www.janejarrow.com/
Education
Disability Services at University of Georgia
Provides academic and support services to qualified students with disabilities
www.dissvcs.uga.edu/
Education
Learning Disabilities Association of America (LDA)
Largest non-profit volunteer organization advocating for individuals with learning disabilities. Works for individuals with learning disabilities, their parents, and th professionals who serve them.
www.ldanatl.org/lda
Education
National Center for Learning Disabilities, Inc. (NCLD)
A national non-profit organization committed to improving the lives of those affected by learning disabilities.
www.ncld.org
Education
Technical Assistance Alliance for Parent Centers
The Technical Assistance Alliance for Parent Centers is an innovative project that supports a unified technical assistance system for the purpose of developing, assisting and coordinating Parent Training and Information Projects and Community Parent Resource Centers under the Individuals with Disabilities Education Act (IDEA).
Parent Training and Information Centers (PTIs) and Community Parent Resource Centers (CPRCs) in each state provide training and information to parents of infants, toddlers, children, and youth with disabilities and to professionals who work with children.
http://www.taalliance.org/
Employment
Raise-Up
The Raise-UP II Grant is a Round III DOL Workforce Incentive Grant awarded to the Three Rivers WIB managed by Goodwill Industries of Pittsburgh. The Grant is working in collaboration with key partners, the Office of Vocational Rehabilitation, the Lancaster WIB, and the Pennsylvania Association of Goodwills.
The goal of the project is to assist the PA CareerLink system in its quest for world-class service for persons with disabilities through the sharing of best practice achievements and elements of best practice.
http://www.raise-up.org/
Employment
Job Accommodation Network (JAN)
The Job Accommodation Network (JAN) is a free consulting service that provides information about job accommodations, the Americans with Disabilities Act (ADA), and the employability of people with disabilities.
www.jan.wvu.edu/
Employment
The Sierra Group, Inc.
The Sierra Group works in the area of disability and employment. The nexus of expertise that brought the organization to the forefront of the industry is our ability to use technology and assistive technology to drive employment opportunities for individuals with disabilities - even severe disabilities.
By thinking "integrated performance" we reduce discomfort, improve accessibility and help to create systems for optimal employee interactions. Our team of qualified engineers, trainers, rehabilitation counselors, ergonomists, and case managers, direct vocational rehabilitation services for our customers and clients.
The Sierra Group, an award winning, certified women's business enterprise has been serving individuals, governmental organizations, agencies and corporations since 1991.
http://www.thesierragroup.com/index.htm
Families
Families: Parents, Children & Youth
National Dissemination Center for Children with Disabilities
Simply put--the Dissemination Center is part of a broad Federal effort to improve results for children with disabilities. We're funded by the Office of Special Education Programs (OSEP) at the U.S. Department of Education to connect you with the resources you need in your efforts on behalf of infants, toddlers, children, and youth who have disabilities.
Epilepsy
Epilepsy Foundation
The Epilepsy Foundation will ensure that people with seizures are able to participate in all life experiences; and will prevent, control and cure epilepsy through research, education, advocacy and services.
www.efa.org/index.cfm
Families: Parents, Children & Youth
National Dissemination Center for Children with Disabilities
Serves as a central source of information on disabilities in infants, toddlers, children and youth. Also contains information on IDEA and "No Child Left Behind" programs as they relate to children with disabilities.
http://www.nichcy.org/
Families
Traumatic Brain Injury in Children and Teens: A National Guide for Families
Help families whose children have sustained brain injuries understand and cope with their child's injury and treatment, locate the appropriate health care services, and find ways to pay short and long term bills. Divided into seven progressive chapters, the guide walks parents through each step of their child's recovery from the hospital to the home. Real life examples, charts, and questionnaires personalize the text.
www.ems-c.org/Family/framefamily.htm
General Information
Agency for Healthcare Research and Quality
(do search on topic such as Traumatic Brain Injury)
www.ahrq.gov/
General Information
Amazon.com
Bookstore on the Internet. Search by subject.
www.amazon.com
General Information
Barnes & Noble
Bookstore on the Internet. Search by subject.
www.barnesandnoble.com/
General Information
Brain Injury Information Page
The Brain Injury Information Page is a page containing general references pertinent to TBI. It is sponsored and maintained by the Brain Injury Law Group.
www.tbilaw.com
General Information
Brain Injury Resource Center
Links to information on brain injury. Items in this library will help you to identify and pursue your goals as they relate to brain injury. This site also has an excellent dictionary of terms commonly used in Traumatic Brain Injury
www.headinjury.com
General Information
Brain Matters
The contents of this website were developed under a grant from the Department of Education.
www.tbimatters.org/
General Information
Centre for Neuroskills
TBI Resource Guide page.
www.neuroskills.com/
General Information
Head Injury Society of New Zealand
www.head-injury.org.nz/
General Information
HealthSouth Press
",,,The HealthSouth Rehabilitation Series of user-friendly, yet authoritative, books to help educate patients and their families in the sometimes difficult, sometimes overwhelming, path of recovery after injury, accident, or illness..."
www.healthsouthpress.com/
General Information
Lash and Associates Publishing/Training
708 Young Forest Drive, Wake Forest, NC 27587-9040
Phone/Fax: (919) 562-0015
www.lapublishing.com/
General Information
Moss Rehab Resource Net
General information about disability.
www.mossresourcenet.org/
General Information
National Center for Injury Prevention and Control at the Centers for Disease Control and Prevention (1999)
Brochures on:
Facts about Concussion and Brain Injury and Where to Get Help
Facts about Brain Injury
www.cdc.gov/ncipc/tbi
General Information
National Resource Center for Traumatic Brain Injury
The mission of the National Resource Center for Traumatic Brain Injury is to provide relevant, practical information for professionals, persons with brain injury, and family members. www.neuro.pmr.vcu.edu
General Information
Ohio Valley Center for Brain injury Prevention and Rehabilitation
Research, on education and programs to improve the quality of life of persons who experience traumatic brain injury
www.ohiovalley.org
General Information
Premier Outlook
A magazine about brain injury. Contains in-depth articles about a wide variety of subjects.
http://www.premier-outlook.com/
General Information
Rehabilitation of Persons With Traumatic Brain Injury
October 26-28, 1998
Vol. 16, No. 1
This is a Consensus Statement from the National Institute of Institutes of Health. It is the product of a non-Federal panel of experts. As such it is an assessment of medical knowledge available at the time of writing.
http://consensus.nih.gov/cons/109/109_statement.htm
General Information
Research & Training Center on Community Integration of Individuals with Traumatic Brain Injury
The primary purpose of this website is to disseminate to people with TBI, their family members and to professionals the results of the Center's research and training activities. The RTC is based at the Mount Sinai School of Medicine in New York City.
www.mssm.edu/tbinet/
General Information
South West Brain Injury Rehabilitation Service
www.swbirs.nsw.gov.au/
General Information
Life with TBI - A Resource for Survivors
Survivor Webpage
Webpage developed by a person living with TBI for others who are in the same situation.
www.tbilife.com
General Information
The ABI/TBI Information Project
This area is dedicated to providing information on brain injury without preference to any particular person, thought, theory or belief. At this point in time it exists because of the work of Len Burns, owner of the St. John's Traumatic Brain Injury Support list (TBI-SPRT), Dena Taylor, Executive Director of The Perspectives Network and Jeff Northon, site co-administrator.
www.sasquatch.com/tbi/
General Information
The Brain Injury Information Network
www.tbinet.org/
General Information
The Ellingsworth Press LLC
Books
www.tbiinfo.com/books.html
General Information
The Perspectives Network
The Perspectives Network, Inc.'s primary focus is positive communication between persons with brain injury, family members/ caregivers/friends of persons with brain injury, those many professionals who treat persons with brain injury and community members in order to create positive changes and enhance public awareness and knowledge of acquired/traumatic brain injury.
Mailing Address: P. O. Box 121012, W. Melbourne FL 32912-1012
E-Mail Address: TPN@tbi.org
URL Address: http://www.tbi.org
General Information
Traumatic Brain Injury Survival Guide
The goal of this online book is to better prepare the head injured person and family for the long road ahead. It can be copied free.
www.tbiguide.com
General Information
Vancouver Island Head Injury Society
www.bc1.com/~vihis/
General Information
Woodbine House
WOODBINE HOUSE publishes The Special-Needs Collection, sixty-three books on disabilities and related topics including AD/HD, autism, celiac disease, cerebral palsy, Down syndrome, fragile X syndrome, learning disabilities, spina bifida, traumatic brain injury, early intervention, inclusion, special education, communication skills, and more. Since 1985 we've prided ourselves on publishing books of the highest quality and best value for parents, children, therapists, health care providers, and teachers.
www.woodbinehouse.com/
Health Care
Institute for Family Centered Care
The Institute serves as a central resource for both family members and members of the health care field. This site shares information facilitates problem solving and promotes dialogue among individuals and organizations working toward family-centered care.
www.familycenteredcare.org
Health Care
American Academy of Pediatrics & American College of Emergency Physicians
For parents of children with special health care needs. Places pertinent medical information in one accessible place
www.aap.org/advocacy/emergprep.htm
Health Care
Families USA Home Page
Families USA is a national nonprofit, non-partisan organization dedicated to the achievement of high-quality, affordable health and long-term care for all Americans.
www.familiesusa.org
Health Care
Healthtouch Online
A resource that brings together valuable information from trusted sources on topics such as medications, health, diseases, supplements and natural medicine
www.healthtouch.com/
Identification
Arizona Governor's Council on Spinal & Head Injuries (1999)
Help families identify TBI. Addresses signs that may indicate serious problems
www.tbigrants.com/arizonaproduct.htm
Law
Neurotrauma Law Nexus
Your information resource for understanding the legal system's involvement in brain and spinal cord injury cases.
www.neurolaw.com/
Law
Parent Educational Advocacy Training Center
Assists the families of children with disabilities through education, information and training.
Information and assistance to families in understanding and negotiating the education and service systems for their children with disabilities. Training for families and professionals that model partnerships and encourage active learning; and Collaboration with and technical assistance to schools, state and local agencies, parent resource centers and community organizations
www.peatc.org
Long Term Care
Family Caregiver Alliance
Founded in 1977, Family Caregiver Alliance was the first community-based, nonprofit organization in the country to address the needs of families and friends providing long term care by developing services, advocating for public and private support, conducting research and educating the public.
www.caregiver.org/
Message Board
The TBI Chatroom and Homepage
www.tbichat.org/
Model Systems
Traumatic Brain Injury Model Systems
Homepage for the Traumatic Brain Injury Model Systems. These are funded through the National Institute on Disability and Rehabilitation research (NIDRR).
www.tbims.org/
Neurology
American Academy of Neurology
The American Academy of Neurology (AAN) provides valuable resources for medical specialists worldwide who are committed to improving the care of patients with neurological diseases.
www.aan.com/professionals/index.cfm
Neurology
National Institute of Neurological Disorders and Stroke
Supports biomedical research on disorders of the brain and nervous system
www.ninds.nih.gov/
Neurotrauma
Neurotrauma Registry
Providing…
To those individuals and families affected by brain injury, spinal cord injury, or other complex neurotrauma, a resource list to assist in the quest for proper care.
To members, including physicians, social workers, case managers, and other professionals dealing with neurotrauma, a forum to provide valuable information regarding their particular services.
To our staff, a valuable experience networking with professionals in creating a meaningful and worthwhile enterprise.
http://www.neure.com/
Parents
Traumatic Brain Injury in Children and Teens: A National Guide for Families
Help families whose children have sustained brain injuries understand and cope with their child's injury and treatment, locate the appropriate health care services, and find ways to pay short and long term bills.
www.ems-c.org/Family/framefamily.htm
Prevention
Think First
National Injury Prevention Foundation
www.thinkfirst.org/home.html
Prevention
Safe USA from Center for Desease Control and Prevention (CDC
www.cdc.gov/safeusa
Prevention
The National Youth Sports Safety Foundation, Inc.
The National Youth Sports Safety Foundation, Inc. (NYSSF) is a national non-profit, educational organization dedicated to reducing the number and severity of injuries youth sustain in sports and fitness activities.
www.nyssf.org/wframeset.html
Research
National Rehabilitation Information Center
Information on research funded by this organization. Funds research in all types of disability.
www.naric.com/
Research
The Rehabilitation Research Center
"…conducts reasearch to better understand and improve outcomes after TBI and Spinal Cord Injury.
www.tbi-sci.org/
Research
Clinical Trials and Noteworthy Treatments for Brain Tumors
www.virtualtrials.com/
Research
Dana Alliance
The Dana Foundation is a private philanthropic organization with interests in science, health and education. It was founded in 1950.
The Dana Alliance is a nonprofit organization of more than 200 pre-eminent scientists dedicated to advancing education about the progress and promise of brain research.
www.dana.org
Resources
Esmerel's Collection of Disability Resources
On these pages, you will find lists of many disability related resources. There are literally hundreds of well-organized links (at last count over 2000). These lists will continue to grow. Individual pages are updated on a weekly basis. For your information and viewing pleasure, I've arranged the resources into a variety of different categories. Feel free to have a look.
www.esmerel.org/
Sexual Health
The Sexual Health Network
The Sexual Health Network is dedicated to providing easy access to sexuality information, education, mutual support, counseling, therapy, healthcare, products and other resources for people with disabilities, illness, or natural changes throughout the lifecycle and those who love them or care for them.
www.sexualhealth.com/
Spanish Translations
Center for Desease Control and Prevention
http://www.cdc.gov/spanish/default.htm
Statistics
Center for Desease Control and Prevention
www.cdc.gov/ncipc/didop/tbi.htm
Stroke
National Institute of Neurological Disorders and Stroke
Supports biomedical research on disorders of the brain and nervous system
www.ninds.nih.gov/
Transition
The National Center on Secondary Education and Transition
The National Center on Secondary Education and Transition (NCSET) coordinates national resources, offers technical assistance, and disseminates information related to secondary education and transition for youth with disabilities in order to create opportunities for youth to achieve successful futures.
www.ncset.org/
Transportation
Getting There (by county)
"Getting There" by county - includes
telephone numbers for Shared Ride, etc.
www.ridesforallpa.com
Vision
The Low Vision Gateway
Listing of "low vision" resources, worldwide
www.lowvision.org/
Alternative Medicine
Center for Alternative Medicine Research
Beth Israel Deaconess Medical Center
330 Brookline Ave.
Boston. MA 02215
www.bidmc.harvard.edu
search on "Alternative Medicine"
Alternative Medicine
National Institute of Health
NCCAM Clearinghouse
PO Box 8218
Silver Spring, MD 20907-8218
888.644.6226
TTY/TDY: 888.644.6226
Website: http://search.nih.gov/
Search on "Alternative Medicine"
Assistive Technology
ABLEDATA
8455 Colesville Road
Suite 935
Silver Spring, MD 20910-3310
800.227.0216
http://www.abledata.com
Assistive Technology
Closing The Gap, Inc.,
P.O.Box 68,
526 Main St.
Henderson, MN 56044
507.248.3294
Email: info@closingthegap.com
Webpage: www.closingthegap.com
Employment
http://www.raise-up.org/
The Raise-UP II Grant is a Round III DOL Workforce Incentive Grant awarded to the Three Rivers WIB managed by Goodwill Industries of Pittsburgh. The Grant is working in collaboration with key partners, the Office of Vocational Rehabilitation, the Lancaster WIB, and the Pennsylvania Association of Goodwills.
The goal of the project is to assist the PA CareerLink system in its quest for world-class service for persons with disabilities through the sharing of best practice achievements and elements of best practice.
This site is designed to serve as a springboard for job seekers, employers, CareerLink staff, and service providers to locate local resources for services which will help remove barriers to employment for persons with disabilities
Spanish Services
Service of Brain Injury Association of America.
800.444.6443
The Spanish Family Helpline will be available 24 hours a day, seven days a
week at 1-800-444-6443. Callers will be able to speak interactively with a
bilingual and bicultural staff member of the Association during normal
business hours
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