Brain Injury Association of Pennsylvania

Avonworth Senior Leads Youth-Driven Effort to Support Brain Safety Across Western PA

Wed, 08 Apr 2026 20:26:03 GMT

Avonworth High School senior Channing McCann has demonstrated remarkable leadership and community spirit through her partnership with the Brain Injury Association of Pennsylvania (BIAPA) to promote bicycle safety for children and youth across Western Pennsylvania. This spring, Channing organized and led a fundraising effort that raised over $1,000 to purchase bicycle helmets for two regional Brain Safety Fairs held in March 2026. Her initiative directly supported BIAPA’s mission to prevent brain injuries through education, outreach, and access to protective equipment.

Channing did far more than raise funds - she also volunteered her time at several key events with BIAPA. On March 14, she joined BIAPA and community partners at the Westmoreland Mall Brain Safety Fair, helping children select and properly fit their new helmets while engaging families in conversations about brain safety. Just twelve days later, on March 26, she continued her service at the Hazelwood Center of Life, where BIAPA and Duquesne University’s Rangos School of Health Sciences collaborated to bring helmets, hands-on activities, and safety education to neighborhood youth. Channing once again played a key role in distributing helmets and sharing the message of injury prevention with families.

The Power of Youth Leadership

Her efforts ensured that children across two communities not only received high-quality helmets, but also learned how to protect their brains while biking, scootering, and playing outdoors. Channing’s commitment reflects the power of youth leadership in advancing community health. Through her generosity, advocacy, and volunteerism, she has helped BIAPA expand its reach and strengthen its mission to keep Pennsylvania’s children safe!

Brain Injury Hero: Natanya Sortland

Sun, 29 Mar 2026 21:17:40 GMT

Embodying the spirit of hope

Natanya Sortland is the kind of person who doesn’t just inspire… she redefines what resilience looks like. A fierce advocate and living example of the power of perseverance, Natanya has transformed her own journey of recovery into a life’s mission to help others.

Before her life changed forever, Natanya was living what many would call a dream life. She was independent, active, passionate about her work and her community. But in her early 40s everything changed. A stroke, followed by a traumatic brain injury, left her legally blind and struggling with severe cognitive challenges. In an instant, the life she knew was gone.

For years after her stroke and TBI, Natanya faced a world that looked nothing like the one she once knew. She was legally blind, navigating cognitive deficits and dependent on others in ways she had never imagined. But even in the hardest moments, she held onto a simple, powerful desire: to give back to the organizations that helped her, to make those resources available to those who need them, and to dance. Step by step, through relentless work and unwavering determination, Natanya rebuilt not only her life, but found her life’s mission.

A Champion for Caregivers

Today, Natanya is an Outreach Coordinator for the Mind Your Brain Foundation and the ambassador for Fighting Back Scholarship Program and Vision Corps. In her work, she shares her story to give hope to survivors and to share resources that can be life-changing. When she speaks, others listen…not just because she survived, but because she speaks with courage, compassion and authenticity. Natanya’s advocacy extends beyond survivors as she champions the often-unseen heroes in the room…caregivers. After living through years of recovery and watching the dedication it takes from loved ones and professional support alike, Natanya worked with Fighting Back to establish an annual Caregiver Walk and Celebration, which recognizes caregivers each year—and connects them to each other and needed resources.

From patient to advocate, from survivor to leader, Natanya Sortland embodies the spirit of hope. Her voice rises not from where she was, but from where she is — at the forefront of change for brain injury survivors and caregivers everywhere.

Caregiver Hero: Marlene Nathans

Sat, 28 Feb 2026 01:54:53 GMT

Offering guidance and hope

When BIRL volunteer and Caregiver Hero, Marlene Nathans speaks with families through the Brain Injury Resource Line (BIRL), she understands their fear and uncertainty in a way few others can. Her compassion is rooted in lived experience — and in a journey that began nearly three decades ago.

In 1998, Marlene’s 15-year-old son, Jason, sustained a severe traumatic brain injury in a car accident. Like so many caregivers, she was suddenly thrust into a world she knew nothing about. She remembers feeling “overwhelmed and alone,” filled with anxiety and fear. At the time, she struggled to find support or guidance.

A few years later, Marlene discovered the Brain Injury Association of Pennsylvania (BIAPA) and attended one of its conferences — a turning point for her family. There, she learned about the Pennsylvania Head Injury Program, which ultimately allowed Jason to transition at age 21 into Success Rehabilitation, a residential program that offered independence, specialized therapies, and a supportive community tailored to his unique needs. The impact was life-changing.

Marlene continued attending BIAPA conferences, gaining knowledge, connection, and strength from survivors, families, and professionals. Seven years after Jason’s accident, she felt called to give back.

“Volunteering on the Brain Injury Resource Line has added meaning to my life by connecting me to individuals and families navigating the challenging journey of brain injury,” she shares. “It’s a deeply personal experience founded in my own family’s story.”

Her early experience of helplessness shaped her commitment to service. “When I answer calls, I strive to offer hope and guidance, along with the resources to ensure no one has to navigate this journey alone.”

Finding joy for herself

Today, Jason is 43 years old and living a good, safe life — something Marlene does not take for granted. And while she continues to be a devoted caregiver, she has also found joy for herself: spending time with family, golfing, playing pickleball, and even taking up needlepoint.

Through her volunteerism, Marlene transforms her family’s hardest chapter into hope for others. She is a steady voice on the other end of the phone and a reminder that even in the most overwhelming moments, support is possible and no one has to walk this journey alone.

Your support for BIAPA helps ensure that when another family makes that call, someone like Marlene is there to answer — offering hope, guidance, and connection when it matters most.

Brain Injury Hero: Tracy Yatkso Onyekanne

Tue, 24 Feb 2026 15:51:37 GMT

From Pain To Purpose

Emmy Award-winning journalist, author, and brain injury advocate, Tracy Yatsko Onyekanne sustained a brain injury during a high school basketball game in her junior year. What followed were eight years of debilitating migraines and neurological symptoms that completely altered the trajectory of her life. She finished most of high school on a homebound program, with teachers coming to her house and tailoring the curriculum to what her brain could handle at the time. She attempted college for one semester, but her brain simply couldn’t handle it and she crashed. She spent years in and out of hospitals, living quite literally in the dark: sheets over the windows because light made her physically sick. The isolation was overwhelming. She battled a deep depression and, at times, felt completely without hope.

But somewhere in that darkness, she decided that if she had a voice, she would use it so others wouldn’t have to walk the same road alone. She began advocating for concussion protection and prevention. In 2012, Tracy became the face of the Safety in Youth Sports Act, helping champion legislation to better protect young athletes from concussion.

"Healing can take time, but there is light ahead."

“My family’s love carried me through when I didn’t have strength of my own, and my faith in Christ sustains me today,” she says. “I am now in a much more healed place — still sensitive at times, still learning my limits — but able to see how far I’ve come. To anyone in the thick of it: the hopelessness you feel is real, but it is not the end of your story. Healing can take time, but there is light ahead.”

Tracy ultimately was able to attend Temple University, and she graduated with a degree in journalism. She has produced award-winning content at PBS, and she now serves as Vice President of the Brain Injury Association of Pennsylvania. For the past six years, she has led monthly support groups for brain injury survivors, believing no one should walk their journey alone, and that healing begins when stories are shared with vulnerability in a safe space.

Tracy will present the Opening Keynote Address - From Pain to Purpose: The Art of Storytelling After Brain Injury - at BIAPA’s 2026 Conference in Lancaster on Monday, June 22. You can learn more about the conference here: biapa.org/2026conference.

CLICK to view Tracy's video about her journey as an advocate for Safety in Youth Sports.

Noah Sideman Tackles Gravel Grinder Races for BIAPA

Thu, 16 Oct 2025 17:57:12 GMT

Riding for Health, Hope & Healing

For the past six months, BIAPA board member Noah Sideman has been riding in Gravel Grinder races throughout central Pennsylvania to raise awareness and support for brain injury prevention, education, advocacy, and recovery services. He concluded his 2025 series with the UnPAved of the Susquehanna Valley race. Thanks to contributions from family, friends and bicycle enthusiasts, he raised over $1,000 for BIAPA. As if riding in a challenging gravel grinder race wasn’t enough, Noah also hosted a BIAPA booth at the Lewisburg Fall Fest the day before the race. Known for their challenging gravel routes and incredible community spirit, participating in the Gravel Grinder races enabled Noah to combine his passion for cycling with his dedication to BIAPA’s mission. His determination and energy truly embody what it means to ride for help, hope, and healing.

About Noah Sideman

Dr. Noah Sideman joined the BIAPA board in the fall of 2024. He has a passion for gravel biking and felt this race series is an excellent opportunity to spread the word about BIAPA across the state. He is a trained neuropsychologist and owns his own mental health practice with locations in Philadelphia, PA and Lancaster, PA. He is also an adjunct professor in the School of Professional and Applied Psychology at the Philadelphia College of Osteopathic Medicine. Additionally, he continues to present and conduct research in the field of brain injury and neuropsychology.

Want to Create Your Own Fundraiser?
If you’re interested in creating your own fundraiser for BIAPA, we can help you! BIAPA can create your personal fundraising page where you can tell your story and accept online gifts for BIAPA. Click Here to look at Noah’s fundraising page as an example. To learn more, please email admin@biapa.

BIAPA Participates in Duquesne University’s Community Engagement Fair

Wed, 15 Oct 2025 21:28:47 GMT

Fostering Partnerships with the Community

The Brain Injury Association of Pennsylvania (BIAPA) was honored to participate in Duquesne University’s Center for Community Engaged Teaching and Research Community Engagement Fair held October 6–8, 2025. This vibrant event brought together more than 60 community service organizations, all committed to fostering meaningful partnerships with students, faculty, and public-facing groups to promote how we can build stronger community connections and better the lives of persons served in our communities. Board member Dr. Michelle McCann represented BIAPA, and she explored with students ways to connect learning with real-world impact beyond the classroom, where they can have meaningful civic impact.

BIAPA is grateful for the opportunity to share resources and raise awareness about brain injury, while supporting students in developing strong workforce readiness skills through community-based collaboration. We thank Duquesne University for hosting such an inspiring event and look forward to future opportunities to work together in building a more informed and compassionate community!

BIAPA Honors Six at 2025 Conference

sears@biapa.org (Anne Sears) — Tue, 08 Jul 2025 15:37:11 GMT

The Brain Injury Association of Pennsylvania paid tribute to six individuals at the 2025 BIAPA Conference, which was held in Lancaster, PA, June 30 and July 1.

Meaghan Wright received the Barb Dively Advocacy Award , which is named for Barbara Dively, a true advocate and champion for the rights of those who have experienced a brain injury, and their families. Meaghan's 40-year career in brain Injury rehabilitation demonstrates the same profound and unwavering commitment to the individuals and families she serves. Her dedication spans a wide range of settings and roles. Her work with BrainSTEPS has been crucial in helping school staff understand how best to support students returning to learn after a brain injury. She educates employers, families, and community agencies on how to effectively meet the unique needs of individuals with brain Injuries. Serving medically and behaviorally intensive clients in residential and in-home settings, she has demonstrated tenacity in advocating with physicians and providers for appropriate and timely treatment. She ensures that Individuals receive the comprehensive care they require, and that families are equipped to follow through with advocacy after services end.

In her work within a home and community-based program, Meaghan demonstrates a unique approach by providing guidance and instruction within the client's specific environment - home, work, and school - ensuring greater real-world success for the individuals she serves. Her advocacy extends beyond individual cases to broader systemic improvements. She consistently advocates for adequate funding and champions the development of policies and trainings within her organization that not only support individuals but also respect their autonomy and self-governance. Meaghan has shown incredible dedication by supporting participants through a variety of significant life challenges, demonstrating a level of commitment that goes above and beyond.

Meghan Chemidlin received the Dan Keating Pioneer in Brain Injury Award , which is named for Dr. Dan Keating, former BIAPA Board President, who played a significant role advancing the field. Meghan is an occupational therapist whose personal experience with mTBls has fueled her deep passion and commitment to improving care for others in this population. Through her work in an outpatient private practice, she has made transformative contributions to both clinical care and professional education. She is the co-publisher of the intervention and course, Concussion, Traumatic Brain Injury, and lnteroception - an innovative curriculum designed to improve self-regulation in individuals with brain injuries. It is the first and only interoception-based curriculum specific to this population, and early research has already shown significant positive outcomes. Her work fills a critical gap in rehabilitation, and it is actively being adopted by clinicians across the country.

She is also the co-founder of NeurOT Consulting, a company that helps neurorehabilitation care teams and individuals develop and enhance comprehensive concussion programs. NeurOT provides training to both individuals and hospital networks, focusing on interoception, neuro-vision rehab, and polyvagal-informed care. Through this work, Meghan is advancing holistic and innovative concussion care on a national level.

As an adjunct professor, international speaker, and mentor to graduate students, she shares her knowledge with current and future professionals. In recognition of her dedication to student mentorship and excellence in clinical teaching, she was recently honored with the Outstanding Fieldwork Educator Award from Moravian University. Her clinical work at A Rise Above Occupational Therapy Services, where she serves as senior occupational therapist, reflects her commitment to person-centered, trauma-informed care. Having navigated her own recovery journey, Meghan brings an unmatched empathy and insight to her work-one that inspires hope and drives change.

Lady Sharper Rennie received the Direct Service Award , which honors a front-line staff member who provides exemplary service to individuals with brain injury. It recognizes the "unsung hero" who has worked for five years or more in the field of brain injury rehabilitation and who has shown dedication and commitment to the individuals they serve. With over 30 years of dedicated service at ReMed, Lady exemplifies the spirit of this award in every way. Her nomination described her as “an institution within ReMed, who has consistently provided exemplary service to individuals with brain injury, embodying the very definition of an ‘unsung hero.’”
Throughout her long and distinguished career, Lady has been a steadfast leader and mentor. She has guided countless staff members, sharing her wisdom and experience, and fostering a supportive and nurturing environment. Her leadership has been instrumental in maintaining the high standards of care for which ReMed is known. Her dedication to her clients is truly remarkable. She has navigated numerous challenges and celebrated countless successes alongside those she serves. Her unwavering support, compassion, and expertise have made a profound difference in the lives of many individuals with brain injury. She has consistently gone above and beyond to ensure their well-being and progress. To ensure she is providing the best care to the individuals she serves; along with providing ongoing education to clients and team members, she maintains her certification as a Certified Brain Injury Specialist (CBIS).

Claire Larson received the John Sears Inspiration Award , which honors an individual who has overcome significant challenges and who has utilized his or her talents and strengths lo inspire others to reach their goals. The award honors John Sears, talented artist and teacher who, despite the challenges of a 1985 traumatic brain injury, continued to teach and make art until his death in 2009. Claire has been a dedicated and tireless volunteer on the Brain Injury Unit at Bryn Mawr Rehab for close to 20 years. She has had a profound long-term impact on survivors and their families. Family members and survivors have shared that meeting Claire within the first few days of admission and hearing her inspiring story of injury and recovery was one of the first moments they truly envisioned a future ahead. They have said, “she gave us hope.”

Claire's volunteer experience touches almost every area and department at Bryn Mawr Rehab. She provides patient transport to and from their PT, OT, ST, Psychology, Recreational, Music, and Art Therapy appointments. She often works in Bryn Mawr’s Horticultural Center where patients use plants and flowers to enhance their therapy experience. In addition to her direct service to patients, she is involved in Bryn Mawr Rehab’s Art Ability program. She also serves on the Volunteer Board, which focuses on volunteer recruitment and fundraising initiatives to support the rehab. Her dedication as a member of our outpatient Brain Injury Support Group has been unwavering. She attends this group monthly and shares her story and provides support to the other group members. She is also a peer mentor for new survivors of brain injury, offering unwavering support and compassion during their hospitalization. She fosters hope and resilience, not just for the immediate future or rehabilitation process, but for life beyond the hospital. Her empathy, patience, and dedication to the success of each individual, as well as her commitment to supporting their families, have had a lasting positive impact on everyone she meets.

Stefani Eichelberger received the Leadership Award , which is presented to an individual, agency, or group of individuals whose far-reaching impact on the field of brain injury rehabilitation has been widely recognized. Stefani joined Community Skills Program of Counseling and Rehabilitation, Inc. as a neurorehabilitation specialist in 2008. She has been a presenter or co-presenter at seven BIAPA Annual Conferences, and she received the Outstanding Poster Award in 201O. She been a presenter at the Pennsylvania Rehabilitation Association's Professional Development Institute, and she has made many presentations at brain injury support groups and other community-based organizations providing services to individuals with brain injuries.

She has served as a member of the Citizen Advisory Committee to the Pennsylvania Office of Vocational Rehabilitation, the Brain Injury Committee of Rehabilitation and Community Providers Association (RCPA), and the Pennsylvania Department of Health's TBI Advisory Board. She has collaborated with the Pennsylvania Department of Health's Head Injury Program, and she has provided services through the NeuroResource Facilitation Program.

On January 1, 2023, Stefani became the Director of Community Skills Program when its founder Sally Kneipp retired and transferred the program to Success Rehabilitation. Stefani oversaw the transition of the program's clients and staff to become a new division of Success Rehab, providing nonresidential services to persons with brain injuries in their own homes and communities. Her leadership skills have led to the growth of Community Skills Program in Pennsylvania and in New Jersey. She is an engaged member of the Leadership Team at Success Rehab, and a capable leader who will undoubtedly continue to contribute to the brain injury community in the future.

Elayne Masters received the Service to the Brain Injury Community Award, which is presented to a person who has sustained a brain injury, a family member, or a professional who works in the field and is a resident of Pennsylvania. The recipient has shown extraordinary and exemplary service in educating and raising social awareness of the needs of persons with brain injury and their families. This individual has taken the initiative to make long-term, fundamental and positive impacts on the lives of people who have sustained a brain injury and their families.

Elaine is a survivor who has made it her personal mission to improve the lives of others affected by brain injury. She is a Brain Injury Resource Line volunteer, a Brain Injury Ambassador, an advocate for brain injury and an advocate for those experiencing food insecurity. She takes every opportunity to use her voice and outstanding communication skills to make the world easier for those who experience brain injury. Drawing on her own experiences trying to secure services after she sustained a brain injury, Elayne effectively shares that story with providers and community members. She has been a tireless advocate for Pennsylvania’s brain injury community on the state and national level. Elaine Masters exemplifies BIAPA’s Service to the Brain Injury Community Award.

Duquesne University’s Student Occupational Therapy Association Supports BIAPA

Thu, 12 Jun 2025 18:08:52 GMT

Duquesne University’s Student Occupational Therapy Association (SOTA) recently hosted a heartwarming Spaghetti Dinner, bringing students, faculty, and community members together for an evening of good food and even better purpose. With enthusiasm and dedication, the organization successfully raised $1,000 for the Brain Injury Association of Pennsylvania, contributing to vital resources for individuals affected by brain injuries and their families. The event was more than just a fundraiser—it was a testament to the students’ unwavering commitment to making a tangible difference in the lives of Pennsylvania residents facing the challenges of recovery.

Beyond the funds raised, the dinner served as an opportunity for SOTA members to deepen their understanding of brain injury rehabilitation and the critical services needed to support recovery. Through conversations, educational discussions, and a shared passion for advocacy, these aspiring occupational therapy professionals demonstrated their dedication to learning how they can help families navigate the complexities of long-term care and reintegration. Their involvement goes beyond this single event, as they continue to seek ways to provide meaningful support, ensuring that those affected by brain injuries receive the necessary assistance every step of the way.

Duquesne University Students Host Spaghetti Dinner to Benefit BIAPA

sears@biapa.org (Anne Sears) — Sat, 22 Mar 2025 20:49:16 GMT

Each year, Duquesne University’s Student Occupational Therapy Association (SOTA), which is composed of 70 students, hosts a benefit Spaghetti Dinner recognizing and honoring a community organization that contributes to the health and well-being of their communities. This year’s Spaghetti Dinner will be held on Tuesday, April 8, 2025, from 5:00 – 7:30 p.m. in the Student Union Ballroom on Duquesne University’s Campus.

All fundraising proceeds from the event will benefit the Brain Injury Association of Pennsylvania (BIAPA) in support of Pennsylvania residents and their families who have been impacted by brain injury. The evening includes a keynote speaker from BIAPA, information about BIAPA’s programs, a charity basket raffle, and of course, pasta!

If you plan to attend, please use the QR code on the event poster to RSVP. The registration form also includes the opportunity to make a donation if you’re not able to attend.

For more information, please contact Dr. Michelle McCann at mccannm2@duq.edu .

Jennifer Lynn Robinson Joins the BIAPA Board of Directors

sears@biapa.org (Anne Sears) — Tue, 21 Jan 2025 15:51:02 GMT

The Brain Injury Association of Pennsylvania (BIAPA) is pleased to announce that Jennifer Lynn Robinson, Esq., has joined the BIAPA Board of Directors.

Jennifer is a Lifestyle & Communications Expert. Her expertise is in strategic networking, communications, leadership, resilience, and business etiquette. She is also a TEDx speaker and a media contributor, who has been featured both locally and nationally. Some of her media coverage includes Cheddar , CBS , NBC , PHL17 , FOX , Forbes , The Huffington Post , Thrive Global , Chicago Tribune and Philadelphia Magazine . She serves as a contributor for Entrepreneur Magazine .

Jennifer teaches Business Communication at The Wharton School. Additionally, she is an influencer and content creator under Being Fancy in Philly & Beyond , working with brands and campaigns. She specializes in fashion, travel, lifestyle and food.

Jennifer received her Bachelor of Arts from Haverford College and her law degree from Villanova School of Law. She holds certifications in Event Planning, Non-Profit Management, Social Media Marketing, Diversity & Inclusion, Hospitality & Tourism and Conflict Resolution. She is also a certified virtual presenter.

Jennifer is a brain injury survivor. CLICK HERE to view a video of her TEDx talk about her injury and recovery journey.

“I am thrilled to be able to serve this organization and continue to speak and advocate for the brain injury community. This is a very personal cause for me as a survivor and I am honored to be part of the Board.”

She lives outside Philadelphia with her husband Walter and their two rescue dogs, Jake and Lilly.

You can learn more at jenniferlynnrobinson.net and follow Jennifer at @jenniferlynnspeaks and @beingfancyinphilly.

Noah Sideman joins BIAPA Board

Sun, 24 Nov 2024 17:03:00 GMT

Neuropsychologist Noah Sideman Has joined the Brain Injury Association of Pennsylvania’s Board of Directors.

Dr. Sideman’s earned a bachelor’s degree in psychology from Dickinson College and a master’s degree in International Education from Framingham State University. From that point, his career focused on education and mental health, working as an English language teacher in Poland and in community mental health in Central Pennsylvania.

After time spent working in the field, he went on to receive his master’s degree and certification in School Psychology from Millersville University of Pennsylvania. This is where his exposure to the brain injury community began, working as a school psychologist in the Centennial School District in Bucks County, Pennsylvania for six years. Wanting to gain a deeper understanding of the brain processes at work in the children and adolescents he treated, he went on to pursue his doctoral degree in Psychology (with focus in neuropsychology and school psychology) from the Philadelphia College of Osteopathic Medicine (PCOM). In his doctoral training, he was the first student to participate in a one-year practicum with BrainSTEPS in Bucks County, PA. He also participated in a research practicum and one-year pre-doctoral internship in clinical neuropsychology at Thomas Jefferson University Hospital’s neurology department, and he became certified as a Brain Injury Specialist (CBIS). He then participated in a 2-year fellowship in clinical neuropsychology at both Thomas Jefferson University Hospital and the Center for Neuropsychology and Counseling. During that time, he conducted clinical research utilizing functional neuroimaging techniques and wet lab procedures investigating pediatric concussion, epilepsy and Alzheimer’s disease.

Dr. Sideman has been published in several peer reviewed journals, and he has presented research in conferences throughout the country. Currently, he has a private mental health practice in Philadelphia: NeuroDynamix Testing and Therapy Solutions PLLC , which provides evaluations and therapy for individuals across the lifespan with learning issues, neurodevelopmental disorders, and acquired neurological conditions. He is also an adjunct professor in the School of Professional and Applied Psychology at PCOM and he continues to present and conduct research in the field of brain injury and neuropsychology.

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BIAPA Board Member Amanda Parezo Receives Governor’s Keystone Award

Sun, 10 Nov 2024 22:42:00 GMT

Congratulations to BIAPA Board Member Amanda Parezo, who recently received a Pennsylvania Governor’s Keystone Award, which recognizes individuals for their significant contributions to their communities, which have helped to improve the lives of others.

The Award was presented to nine Pennsylvanians at Governor Josh Shapiro’s first State Dinner at the Governor’s Residence in Harrisburg.

“As I travel all across our Commonwealth, it’s the stories of Pennsylvanians who are making a difference in their communities that inspires me and keeps me going,” said Governor Shapiro. “The First Lady and I are honored to recognize nine exemplary Pennsylvanians who are improving their communities. We congratulate and thank them for their contributions to our Commonwealth, dedication to their communities, and commitment to service.”

In addition to serving on the Brain Injury Association’s Board of Directors, Amanda Parezo is adoctor of occupational therapy and a professor at Thomas Jefferson University. In 2021, she was struck with a stray bullet while playing kickball with friends, causing paralysis from the waist down. She now uses a wheelchair, which has changed her perspective on accessibility. Through her work and activism, she spreads awareness about inaccessibility in Philadelphia. She is also a motivational speaker who shares her story to advocate for ending gun violence.

Reflecting on receiving this honor, Dr. Parezo said, “It feels so wonderful to be seen and listened to. I am so incredibly honored to be one of the nine awardees who were celebrated at this inaugural event!”

You can follow Amanda Parezo on Instagram at @amandaparisoh.

The post BIAPA Board Member Amanda Parezo Receives Governor’s Keystone Award appeared first on Brain Injury Association of Pennsylvania .

Michelle McCann and Elijah Olson join the BIAPA Board

Fri, 26 Jul 2024 20:03:00 GMT

The Brain Injury Association of Pennsylvania is pleased to announce that Elijah Olson and Michelle McCann have joined the BIAPA Board.

Dr. Michelle McCann started her rehabilitation pursuits at the University of Pittsburgh where she received her undergraduate degree in occupational therapy. Later, she earned her post-professional doctorate at Chatham University in Pittsburgh, Pennsylvania. Throughout her 30-year career, Michelle has had a long-standing interest in neurorehabilitation, and she holds clinical certiﬁcations in Neurodevelopmental Treatment (NDT Certiﬁed), Brain Injury Specialist with the Academy of Certiﬁed Brain Injury Specialists (CBIS), and Prospective Payment Certiﬁed Specialist (PPSC). In her previous roles within acute rehabilitation, she developed and managed disease- certiﬁed programs in several chronic disease conditions including acquired brain injury, stroke, Parkinson’s and multiple sclerosis rehabilitation.

In past connections with BIAPA, she used her expertise in community engagement to build support group learning networks for those with neurological conditions and their care givers. She enjoys service in many professional and community-based organizations, such as the American Occupational Therapy Association (AOTA), Pennsylvania Occupational Therapy Association (POTA), Keystone Chapter of the National Multiple Sclerosis Society, American Congress of Rehabilitation Medicine (ACRM), and other local groups. Dr. McCann has presented throughout a range of professional conferences, both regionally and nationally, regarding the beneﬁts and necessity of interprofessional interventions for clients with neurological diagnoses and services advocating for their caregivers’ wellbeing. She is excited to continue connecting with BIAPA and states, “It is imperative that we continue to expand upon the mission of BIAPA and advocate for the necessary services that will enable brain injury survivors and their families to have the highest level of recovery while protecting their overall quality of life.”

Elijah Olson survived a serious car accident in 2010. He was diagnosed with Diﬀuse Axonal Injury (DAI) Traumatic Brain Injury (TBI) and underwent extensive in-patient and out-patient therapy. This life-altering event ignited a profound commitment to the ﬁeld of brain injury recovery and rehabilitation.

Elijah pursued his nursing education at Wilkes University, graduating from the Accelerated Bachelor of Science in Nursing (ABSN) Program, and passed the NCLEX in October 2017. He earned certiﬁcations as a Certiﬁed Rehabilitation Registered Nurse (CRRN) and a Certiﬁed Brain Injury Specialist (CBIS). Currently, he serves as a registered nurse in the Intermediate Care Unit (IMCU) at Chambersburg Hospital. His prior experience includes signiﬁcant contributions at the Penn State Rehabilitation Hospital in the Brain Injury Unit, where he co-chaired the Brain Injury Program. His eﬀorts were instrumental in helping the hospital achieve CARF certiﬁcation for its Brain Injury Program. Furthermore, he played a key role in making the hospital the 8th partner with the Brain Injury Association of Pennsylvania’s Ambassador Program.

As a board member, Elijah is excited to work on expanding the Ambassador Program across Pennsylvania, with the goal of reaching every individual who has sustained a brain injury.

Elijah and his wife Michaela recently welcomed a baby boy they named Theo.

The post Michelle McCann and Elijah Olson join the BIAPA Board appeared first on Brain Injury Association of Pennsylvania .

BIAPA Honors Four at 2024 Conference

Fri, 28 Jun 2024 20:03:00 GMT

The Brain Injury Association of Pennsylvania honored four people at its 2024 Conference in Lancaster. Steve Holefelder received the Pioneer in Brain Injury Award; Damon Slepian received the Service to the Association Award, Amy Casarella received the John Sears Inspiration Award, and Howard Blumberg and his family received the Dennis Minori Family Tribute Award. The award recipients are pictured below with BIAPA President Madeline DiPasquale and Past President Ann Marie McLaughlin.

Steve Holefelder has worked in the field of brain injury rehabilitation for more than 30 years. He has been a pioneer in developing client services and interventions that have supported brain injured individuals and their families regaining a sense of meaningful life activities. As an occupational therapist, he has been one of the pioneers of community integration-focused sessions. He works compassionately and creatively with clients to assess their interests and capacities and to develop stable activity patterns. He had used innovative strategies to help clients live as independently as possible. In many cases he has developed volunteer placements or return to work plans that have remained in place and brought the client satisfaction for many years. Steve has collaborated with many employees to have them support therapeutic work trials in which, with staff coaching and support, the client is able to resume productive employment. He has worked with clients to support their efforts to accept revised goals or abilities after their injury and to feel capable and productive in new roles and relationships.

Damon Slepian has served on the BIAPA Board of Directors for 10 years, during which he served as a vice president and chaired the Financial Oversight Committee. Thanks to his professional expertise, BIAPA was able to survive the pandemic and to develop new initiatives and approaches to support the organization going forward. His insights and contributions have been invaluable. Damon believes in BIAPA’s mission, and he lives its values. He understands the role BIAPA plays in supporting survivors and caregivers, and he has established and strengthened a framework that will allow the association’s programs to continue to serve the brain injury community. BIAPA thanks Damon for his dedication, creativity, expertise and guidance.

Amy Casarella survived a stroke in 2020 and three brain surgeries, and she continues to have seizures. Despite these physical challenges, she gives much to her community. She is a graduate of Bryn Mawr Rehab’s Project SEARCH, and she was the main speaker at its Graduation. Currently she works at Paoli Hospital and volunteers at Bryn Mawr Rehab. Amy cycles multiple miles on Sundays with the Pennsylvania Center for Adapted Sports, and her cycling was featured on the local news in May 2024.

Amy has had to overcome many obstacles and losses in her life, including partial paralysis with her stroke and having her beloved daughter pass away. With all that she has had to face, Amy could have become bitter and she could have withdrawn from life, but she has a gift of turning her pain, grief and challenges into a passion for helping others through their difficult times. Amy, in her work and her friendships, is able to show and share her emotional vulnerability with others, thus giving them the knowledge that they are not alone, that someone has empathy for them, cares about them and shares their life difficulties.

Amy has a wonderful sense of humor; she is an inspiration to many people and a staunch supporter of peers/patients at her jobs and of her friends in the brain injury community. She is part of a group of brain injured persons who met at a brain injury retreat last year. That group recently held a fundraiser to offer more people the opportunity to attend similar retreats. Amy gives her all to whatever she does, and she was the top fundraiser of this group.

CLICK HERE to view a video about Amy

Howard Blumberg was about 12 years old when he was riding his bike near his home and was hit by a car, sustaining a very severe brain injury. He is now 56 years old, lives in his own apartment, is employed, and has received pay increases, bonuses, and recognition from his past and current employers for his dedication to his job and his work performance.

Howard deserves recognition for his achievements, but he would be the first to say that the love and support he has received from his father Ken, his mother Nora, his sister Stephanie, brother-in-law David, and his two nieces, that has contributed to his successful journey over the past 40 plus years. He has far exceeded the initial post-injury expectations. Two brain injury providers – Community Skills Program and ReMed – have assisted Howard in various ways over the years. His mother Nora’s unwavering and extremely effective advocacy for insurance funding for timely, beneficial post-acute rehabilitation services has resulted in continuing services for Howard.

Howard’s parents never missed our family/team meetings with Howard and gave very salient input into his treatment planning and implementation. Nora also supported and attended Howard’s presentation on the survivor panel at a past BIAPA Annual Conference and Mind Your Brain Conference in Philadelphia. This tribute to The Blumberg Family does not even begin to describe their part in Howard’s post-injury recovery. Sadly, Howard’s father, with whom he enjoyed a wonderful relationship – attending sports events and playing golf with him, died in April. But the strength of The Blumberg Family will help them all face life’s challenges and transitions with fortitude and resilience.

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Amanda Parezo and Kate Turner join the BIAPA Board

Thu, 25 Jan 2024 21:25:00 GMT

The Brain Injury Association of Pennsylvania is pleased to announce that Amanda Parezo and Kate Turner have joined the BIAPA Board of Directors.

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Long Covid and Brain Fog

Wed, 24 Jan 2024 20:59:00 GMT

Have you heard the term from those with reference to their previous Covid 19 viral infection:” I have long-COVID” or “I am a COVID long hauler?”

What is long Covid ? First of all please be assured that “long-Covid is real. According to recent survey 65 million individuals previously infected with the COVID-19 virus have long Covid. That is 1 in 5 (20%) adult survivors aged 18-65 and 1 in 4 survivors aged 65 years and older (25% or one quarter) have a health condition related to their previous COVID -19 illness . And a most recent CDC posting by the CDC people with “long Covid”, often referred to by doctors as “post-COVID conditions” can have a wide range of symptoms that can last weeks, months, or even years after infection. Sometimes the symptoms can even go away and come back again. So you are not alone and the symptoms you are experiencing are real.

For more specific details you can check the CDC link ( https://www.cdc.gov/coronavirus/2019-ncov/long-term-effects ) ,

What are some of those symptoms? According to the results of a recent study , of 1.2 million people from 22 different countries who had symptomatic SARS-CoV-2 infection (Covid disease) the prevalence of “Long Covid symptoms” amounted to 74,000 of those individuals. The major three symptoms reported from that group of people were fatigue, respiratory symptoms including shortness of breath, and cognitive problems or “brain fog”. So again , you are not alone if you are experiencing any of these symptoms 30 or more days after your Covid infection You are not imagining them. These post-COVID conditions, i.e., ‘long-Covid’ may not affect everyone the same way. People with post-COVID conditions may experience health problems from different types and combinations of symptoms happening over different lengths of time. Though most patients’ symptoms slowly improve with time, speaking with your healthcare provider about the symptoms you are experiencing post-COVID could help identify new medical conditions. Post-COVID conditions can last weeks, months, or years after COVID-19 illness and can sometimes result in disability.

* Journal of the American Medical Association (October 25, 2022 Volume 328, Number 16)

Consistent with the reports from 22 different countries, for the United States the CDC reports that the most commonly reported post-Covid/Long Covid conditions include the following:

General symptoms ( Not a Comprehensive List)

Tiredness or fatigue that interferes with daily life
Symptoms that get worse after physical or mental effort (also known as “ post-exertion malaise ”)
Fever

Respiratory and heart symptoms
Difficulty breathing or shortness of breath
Cough
Chest pain
Fast-beating or pounding heart (also known as heart palpitations)

Neurological symptoms
Difficulty thinking or concentrating (sometimes referred to as “brain fog”)
Headache
Dizziness when you stand up (lightheadedness)
Pins-and-needles feelings
Change in smell or taste
Depression or anxiety
Most patients’ symptoms slowly improve with time.

HOW TO MANAGE YOUR LONG COVID SYMPTOMS

Though most patients’ symptoms slowly improve with time, many people with unexplained symptoms may be misunderstood by their healthcare providers, which can result in a delay in getting a diagnosis and in receiving appropriate care or treatment. Speaking with your healthcare provider about the symptoms you are experiencing post-COVID could help identify new medical conditions. Post-COVID conditions can last weeks, months, or years after COVID-19 illness and can sometimes result in disability.

In preparing for a visit with your primary doctor to discuss your long-Covid (PCP) symptoms to help your visit be more productive maybe prevent you leaving the appointment feeling disappointed that your complaints were not taken seriously, the CDC created an check list for you to complete before your appointment. CLICK HERE to download the chart.

STRESS & ANXIETY REALTED TO THE COVID-19 PANDEMIC

The World Health Organization and the Centers for Disease Control and Prevention consider the Covid-19 Pandemic as one of mankind’s major catastrophic events. To date it is responsible for over 1 million deaths in the United States and 6.7 million deaths worldwide. The total number of deaths in all American wars is estimated to be 184,000-250,000. Covid has taken almost 27 times that amount. Such a global tragedy has affects on all of us.

Are you experiencing increased stress and anxiety at this time related to the Covid pandemic? In addition to the difficulty that comes with living our everyday lives, the daily news announcements of new variants, ne w warnings, new outbreaks of infection in this country and in the world provides a background that for many amplifies the day-to-day worries we all share.

Here are some steps that may help manage some of that stress and anxiety:

Take breaks from watching, reading, or listening to news stories , including social media. Hearing about the COVID-19 pandemic repeatedly can be upsetting.
Take care of your body .
Take deep breaths, stretch, meditate , or practice mindfulness .
Try to eat healthy, well-balanced meals .
Exercise , if you can. Listen to signs from your body.
Get plenty of sleep .
Avoid alcohol and drugs.

Make time to unwind . If you feel able to, try to do some activities you enjoy.

Connect with others . Talk with people you trust about your concerns and how you are feeling.

For more information, explore CDC’s recommendations on how to cope with a traumatic event . https://www.cdc.gov/coronavirus/2019-ncov/long-term-effects/care-post-covid.html

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BRAIN FOG and FATIGUE – WHAT TO DO ABOUT IT?

Wed, 24 Jan 2024 20:12:00 GMT

Brain fog is one of the most common symptoms that occur after a Covid infection and is usually part of long Covid. It often shows up after the symptoms like cough, congestion, headache, and sore throat are gone.

Brain fog can come with fatigue, a very exhausting type of fatigue, the kind of fatigue that feels like you have walked up a hill for miles but you’ve only walked into your kitchen. The medical term for this type of fatigue is post exceptional malaise.

We all want our minds to be clear and work fast. We all want the energy we had before this infection. However many of the things we do to try to achieve these goals actually can make matters worse.

So what can we do to not harm ourselves and help make ourselves better?

There are now Post Covid Care Clinics in different places in the country to help treat this problem. Some are run by the Cleveland Clinic for Medicine.

Here are some of their strategies for both brain fog and fatigue:

1. They teach a self-guided program that uses a slow and gradual progression of rehabilitation using cognitive and physical therapy. They use separate treatment programs for mild, moderate and severe symptoms. The program includes guidance from physical therapists,, occupational therapists, and speech therapy.

Overall the program emphasizes a gradual increase in activity and level of complexity, not rushing oneself to make progress.

Many people around us seem to take pride in their ‘ability’ to multi-task. Multi-tasking is a myth. We can attempt to do several things at once but in reality we are doing a few things poorly instead having the concentrated effort required to do one thing well.

2 For cognitive clarity they recommend a low histamine, low inflammatory diet with foods of a low glycemic index.

3. Vit B 12, Carotene, Co-enzyme Q 10, and Omega 3 fatty acid supplements may be helpful and are being tried by many. Presently some doctors are trying different medications for fatigue and brain fog, two of them are Methylphenidate and Amantadine. Methylphenidate is typically used for ADHD, Narcolepsy or Somnolence. Amantadine is prescribed for Dystonia and Parkinson Disease. Both drugs affect the central nervous system.

4. Acupuncture is also being trialed.

Overall a sleep evaluation is a key component of the assessments performed at Long Covid or Post Covid Clinics. A balanced lifestyle plays an important role in restoring optimal cognitive function; combined with the component of time, these seem to be two of the key underlying factors to reverse the effects of the Post Covid symptoms of brain fog and fatigue.

Post-COVID Assessment and Recovery Clinic – Penn Medicine

https://www.pennmedicine.org/for-health-care…

On entry, patients are evaluated to determine their personal, health and rehabilitation needs. Patients can expect an initial one-hour virtual visit via telemedicine to begin this screening. Our screening methods include: 1. Medication reconciliation 2. Rehabilitation Needs Screen: Bowel, bladder, pain, ADL/iADL performan… See more

Recovery After Covid-19

Reports suggest that following infection, many novel coronavirus patients will experience lingering deficits in pulmonary and cognitive functioning, as well as multifaceted health issues … See more

What Does Post-Covid Care Look like?

Questions? For clinical questions, referral, and scheduling, please call 215-893-2668 . Records can be faxed to 215-893-2686.

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BIAPA Participates in Brain Injury and Opioid Misuse Initiative

Tue, 19 Sep 2023 17:57:00 GMT

In recent years, opioid misuse has become a significant public health challenge, with many unwanted consequences, including an intersection with brain injury. Opioid use disorder increases the risk for brain injury .

Individuals who are addicted to opioids and/or survive overdose can experience brain damage because of lack of oxygen to the brain. Those who misuse substances are also more susceptible to brain injuries caused by falls and violence. Additionally, growing evidence suggests that individuals with brain injuries may be uniquely susceptible to opioid use disorder as a result of their struggles with chronic pain, pre- and post-injury addiction, neurobehavioral challenges, medication mismanagement, and difficulty accessing effective treatment.

Brain injury impacts an individual’s ability to concentrate, remember, plan, problem-solve, and self- regulate. These neurocognitive challenges leave individuals with brain injury less equipped to participate in and benefit from conventional substance abuse treatment and more likely to experience treatment failures. In fact, research suggests that those with a history of brain injury need adaptations to their treatment as well as long-term support in order to succeed. They also benefit from being connected to specialized brain injury services and resources.

WHAT ARE WE DOING?
The Pennsylvania Department of Health is partnering with the Brain Injury Association of Pennsylvania (BIAPA) to raise awareness of the intersection of brain injury and opioid misuse and to provide training and consultation to substance abuse providers and professionals who work with individuals struggling with opioid misuse and/or addiction.

HOW WILL THIS HELP?
By increasing both knowledge and awareness of this issue, we hope to build the capacity of professionals who come into contact with individuals with both substance use disorder and brain injury to identify and treat both problems successfully. This program will also highlight statewide resources.

WHAT WILL THE PROGRAM DO?

● Raise awareness of the intersection of brain injury and substance misuse

● Provide training to providers and professionals who work with individuals with substance abuse disorder and/or brain injury

● Offer assistance to providers who want to develop their ability to identify, treat, and/or refer individuals with both brain injury and substance abuse disorder.

FOR MORE INFORMATION

Contact: Tara DiGuilio 717-753-5619 diguilio@biapa.org

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BIAPA Honors Five at 2023 Conference

Fri, 07 Jul 2023 16:56:00 GMT

The Brain Injury Association of Pennsylvania honored five organizations and individuals at the 2023 Conference in Lancaster.

The Service to the Brain Injury Community Award was presented to the Fighting Back Scholarship Program (FBSP). Founded in 1989 by Scott Dillman, FBSP assists individuals who have suffered life-changing illnesses or injuries and are without the finances needed to participate in a rehabilitative exercise program. FBSP seeks to extend rehabilitation through individualized fitness programs and personal training. It also provides a welcome and necessary connection for individuals to a community and other people, something which is often lost after disability. Each year, FBSP serves approximately 80 individuals with brain injuries, including veterans, through both in-person and virtual training. The Fighting Back Scholarship Program gives participants a means to improve their health, and it offers them a sense of purpose and community.

The John Sears Inspiration Award was presented toMichael Wright. Since sustaining a brain injury when he was a high-school senior in 1996, Michael has earned his Bachelor of Arts degree from Penn State University, with a focus on interdisciplinary humanities. He has also earned certifications as a Reiki Master Practitioner, as a Mindfulness-Based Stress Relief Therapy Trainer, as a Mindfulness-Based Cognitive Therapy Trainer, in Hypnosis, and as a Support Service Professional. He is employed full-time as a warehouse cycle counter and clerk for a truck body company and part-time as a direct support professional working one-on-one with individuals with disabilities. He also writes poetry and has published a book of his poetry. At BIAPA’s 2022 Conference, he read one of his poems at Cristabelle’s Coffee House. Michael participates regularly in the monthly brain injury support group at Reading Hospital Rehabilitation, and he has been asked by Reading Hospital Rehab to join the BIAPA Ambassador Program to provide peer support. BIAPA looks forward to seeing Michael inspire other survivors of brain injury to persevere and succeed.

The Dennis Minori Family Tribute Award was presented to the Reiter Family. In 2012, Rebecca (Becky) Reiter sustained a traumatic brain injury in a motor vehicle accident. At the time of the accident, her children Abigail, Albert, Adrianna, and Alias, were 16, 11, 10, and 8 years old, and they had to adjust to their mother’s challenges. Their commitment to her recovery was unwavering, despite the demands of their own educations and household tasks. While receiving outpatient rehabilitation services until 2016, Becky also managed a community supported agriculture program. She subsequently worked part-time as a sales associate and began pursuing her Ph.D. in leadership at Lancaster Bible College. With the extensive support of her children in all aspects of their family life, she was able to continue to make remarkable progress and obtained her Ph.D. in 2022. Becky has repeatedly pointed out that her accomplishments would not have been possible without her children’s love and support. At BIAPA’s 2022 Conference, her children—then 24, 19, 18, and 16 years old—gave a presentation on “A Child’s View of a Parent’s TBI.” It was a well-received program designed to help other families cope with the sudden and monumental changes following a family member’s brain injury.

The BIAPA Organization Award was presented to IMPACTED, Inc. , which was founded by Tom and Pattiann Berton following their son’s concussion in 2011. IMPACTED is a non-profit organization designed to increase awareness of brain injury and to impact “the effects of concussion in youths through prevention, education, advocacy and support.” It offers support to students, their families, and to organizations working with brain-injured youth. IMPACTED, Inc. has worked with Intermediate Units and has donated Apple technology to be used as part of a lending library to support the educational needs of students. It has also provided concussion awareness scholarships and supported Make-A-Wish opportunities for children with brain injury. In May 2022, IMPACTED, Inc. provided the CDC’s ConcussionWise training to school district coaches at no cost to the attendees. It also collaborates with BrainSTEPS and school teams to support students’ return to school after a brain injury. IMPACTED, Inc. also contributes to state-wide advocacy efforts. IMPACTED has had a positive effect on the community, schools, and children across the state and BIAPA appreciates its contributions to Pennsylvania’s brain injury community.

The Service to the Brain Injury Association of Pennsylvania Award was presented to Stefanie Bauman. This award recognizes an individual’s contributions to BIAPA. Its recipients are considered to be integral to BIAPA’s mission and to supporting ad implementing BIAPA’s most important initiatives. By leading BIAPA’s Annual Conference for the past three years, Stefanie Bauman has demonstrated her continued commitment to persons with brain injury and their care partners through her resolute perseverance and persistence, her organizational talents and her creativity. Her governance of the Conference Committee assures that all attendees experience a high standard of excellence. The success of BIAPA’s Conference is due to her leadership.

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Pickleball Tournament Benefits BIAPA

Wed, 31 May 2023 16:26:00 GMT

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